Tuesday, 18 June 2013

TTTS and SIUGR?

So we have met with TTTS, fought the battle and so far, we have survived. On week 26, Prof B mentioned that if the twins' amniotic fluids did not stabilize, I have to go for amnio reduction the week after. We more or less have to live week by week - right now, I am not even sure when my due date will be.

On week 27, both twins had an almost equal amount of fluid in their amniotic sacs, hence, we were told that I need not go through amnio reduction. Thank Allah for that because I do not like to be poked around especially since I just got poked on my stomach and both my hands a few weeks back.


Such an unglam picture of me but I must tell you, the stitches on my stomach was not as painful as the needle and tube that the young doctors in Ipoh had poked on my hand to administer antibiotics into my body. By the 2nd night, they had to change the needle to my right hand because they could not get the antibiotics to flow in - the fluid they injected was stuck or something. That stinging pain every time they injected the antibiotics into the tube was so painful, I still have nightmares about it. When they took out the needle, the vein on my left hand was so bruised it hurt when pressure was applied. The next morning, the same thing happened to my right hand - lucky for me, I was discharged in the afternoon.

So on week 27, after battling TTTS for about a month or so (babies' amniotic sacs remained at 10cm for recipient and approx 2.7cm for donor twin for 2 weeks after surgery, before surgery, it was nearly 13cm for recipient and 0 for donor twin), we were relieved to have found out that our babies were doing great. Both donor and recipient finally had 6cm of fluid in their own sacs. We thought that the ordeal was finally over, but like I said earlier, we had to live week by week because TTTS was not the only thing that we had to be worried about - especially for identical twins with shared placenta.

On week 28, our donor twin had 2.97cm of fluid in his sac, while recipient twin had around 5cm. Both babies had a growth spurt but it seemed like donor twin's (i.e Baby R) lower body was a bit smaller than the other parts of his body. Prof B had reported that the donor twin might have Asymmetrical IUGR (read all about it here: http://kidshealth.org/parent/medical/endocrine/iugr.html ) but he did mention that we should not worry too much about it, even my new obgyn, Dr Anita was not too concerned because the doppler readings on Baby R was still stable. Hopefully, both Baby R and Baby Q are growing healthily inside, InsyaAllah.

Meeting Prof B and Dr Anita again tomorrow. Will update again once we have news on the babies' development.


Belly at nearly 29 weeks gestation - 7 more weeks to go to reach full term! :)

2 comments:

  1. Hi.. I'm Tika from Indonesia. I'm reading your blog and glad that I'm not alone. I'm 11 weeks pregnant now, last night my doctor told me that my twins have TTTS. Because they are not in the same size. I wanna ask you about Ipoh Hospital - Dr.Japaraj because I'm planning to see him soon to check my twins. Otherwise, who do you recommend to go to or what hospital that you think can handle TTTS well? Anyway, I hope your babies are doing okay. God bless. Thanks a lot.

    ReplyDelete
    Replies
    1. Hi Tika, I hope you and the babies are doing ok.. Has your doctor told you at which stage of TTTS your babies are at? I went for surgery at Stage 2, my donor baby is smaller than the recipient. Dr Japaraj is a very good doctor, you should see him for consultation. You can also email him 1st before making any arrangements (his email add is japaraj@hotmail.com), he will be able to advise you better. I am not sure about the other treatment centers, but I heard that they are much more expensive and very far. My doc in Singapore said there are treatment centers in Hong Kong and Australia as well, but he recommended Dr Japaraj in Ipoh. My prayers goes out to you and your babies, God bless!

      Delete